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MIRACUM and DIFUTURE DIZ are focusing their resources on establishing a stable connection to the FDPG

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In early summer 2022, MIRACUM had released its consortium research portal, particularly based on ProSkive and i2b2, with features for feasibility queries and project data usage requests for researchers within the consortium, several months prior to the MII’s internal opening of the national health research data portal.

During a strategy workshop jointly conducted in October 2023 by the DIFUTURE and MIRACUM DIZ leaderships, there was discussion on whether the DIFUTURE DIZ should also join this MIRACUM research portal or if they should collectively prioritize strengthening the national Health Research Data Portal (FDPG). Despite the significant development resources and effort invested by MIRACUM partners in gradually building their consortium research portal, all DIZ leaderships unanimously decided to close their consortium portal by the end of October 2023. This decision aims to streamline resources efficiently and focus entirely on establishing a stable and continuously growing connection to the national Health Research Data Portal (FDPG).

“With the early cooperative development of the MIRACUM research portal, which involved contributions from all MIRACUM sites, we have gained valuable experience in cross-site data sharing projects, and our teams have grown tremendously through this shared challenge,” commented MIRACUM consortium spokesperson Ulli Prokosch. “However, now that the FDPG has achieved a stable maturity level and was opened for use by researchers beyond the MII in May 2023, maintaining an additional portal limited to one or two consortia no longer makes sense. Moving forward, we prefer to concentrate all our efforts and resources on ensuring a stable connection to the FDPG.”

“Individual components of the MIRACUM research portal will continue to be utilized in both MIRACUM DIZ and our DIFUTURE DIZ (such as i2b2 and OMOP, which also offer excellent opportunities for international collaborations), but maintaining a fully operational cross-site networking infrastructure in parallel with the given scarce DIZ resources is not feasible. Therefore, our DIFUTURE DIZ will continue to focus entirely on establishing a functional connection to the FDPG and expanding it with additional core dataset modules,” added Martin Boeker on behalf of DIFUTURE.